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Louise's story
Living with lymphoedema and battling cellulitis

My journey with lymphoedema began about 16 years ago after IVF treatment when my left leg began to swell. After ruling out a blood clot I was left confused and basically told I just had a big leg! After years of doctors' appointments and doing my own research, someone finally listened and referred me to a lymphoedema clinic. On arriving at the clinic, the relief to be told I was correct was amazing and I was finally able to get some answers. The nurse said I have primary lymphoedema triggered by a change in hormones and that I was born with a faulty lymphatic system.

I now visit my nurse every 6 months where I am measured for [compression] stockings and talk through any concerns I may have.

I currently wear a Jobst grade 3 full left leg stocking with separate toe caps and have a Comfiwave garment for night-time. All of which I get through Patient Choice, and they are delivered directly to my door.

I have unfortunately had cellulitis a couple of times, on one occasion it was so severe I was hospitalised. I was then put on prophylactic antibiotics for three years and - thank goodness - I've had no cellulitis since!

There are several things I do to manage my condition. I try to swim at least three times a week, I use a vibration plate daily, and I also have a Haddenham pump [the Lymphflow Advance] . I've also recently started doing lymphatic massage myself. Although these steps don't reduce the size of my leg (aka 'big Dave' - as I call it!), they definitely help with any pain and my movement. I have also had manual lymphatic drainage (MLD) and bandaging at times, with my wonderful lymphoedema nurse Dawn.

I'm a member of the Lymphoedema Support Network, which has so much helpful information and top tips for people suffering with this condition.

Having lymphoedema affects my life in the sense that I always need to make time for my leg and need to plan ahead for certain situations. And buying shoes, well, that's a whole different problem! However, I realise there are worst things in the world than having a big leg. I am always happy to educate people on the condition when they ask me questions. I think campaigns like this are so important to spread awareness and to let others know they are not alone in rocking the stockings! ❤️

Further information

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