Living with a long-term health condition can sometimes feel overwhelming - but you are not alone.
At Patient Choice, we are committed to supporting patients living with a range of long-term health conditions, including lymphoedema, lipoedema and eczema, as well as those adjusting to life with a stoma.
We understand the unique physical and emotional challenges each of these health conditions can bring, and we're here to help you feel informed, supported and empowered.
This page offers lots of links to further support and information on a range of health conditions from relevant charities and support networks. Helping you to take control of your health and live more comfortably and confidently each day. So please do reach out for the support you need!
There is also a lot of practical advice and self-care tips available in the guides section of this website and we are developing this important patient resource on an ongoing basis. If there is a topic you would like to see included in this section in the future, please do email us and let us know!
Image supplied by a lymphoedema patient, used with consent.
Lymphoedema Support Network
A UK-based charity offering help, advice and support for lymphoedema patients as well as information for healthcare professionals.
Helpline: 020 7351 4480
(Mon-Fri 10:00-13:00 & 14:00-16:00)
Email: admin@lsn.org.uk
Website: www.lymphoedema.org
Lipoedema UK
A charity raising awareness and supporting patients diagnosed with lipoedema.
Individual patient membership costs £25 per year, giving access to regular webinars, newsletters and their support community.
Email: info@lipoedema.co.uk
Website: www.lipoedema.co.uk
British Lymphology Society
Providing a strong professional voice and support for those involved in the care and treatment of people with lymphoedema and related lymphatic disorders, including lipoedema.
Phone: 01452 790178
Email: admin@thebls.com
Website: www.thebls.com/
Legs Matter
Legs Matter is a registered UK charity formed by a coalition of healthcare organisations to ensure that anyone with a leg or foot problem understands their condition and receives the care, attention and support they need. Operated under the governance of the Society of Tissue Viability. There is a wealth of information and resources on their website.
Email: support@legsmatter.org
Website: www.legsmatter.org
Lymphoedema United
Lymphoedema United is an online support network where people living with lymphoedema can access information and guidance from medical experts and product providers. Membership is free of charge.
Email: hello@lymphunited.com
Website: www.lymphoedemaunited.com
Colostomy UK
A UK-based charity supporting ostomates and healthcare professionals. Their website features comprehensive information about living with a stoma. Join their active community group on Facebook.
24-hour free helpline: 0800 328 4257
Live chat available on their website
Website: colostomyuk.org
The Urology Foundation
Supporting urology patients and professionals in the UK and raising awareness of a broad range of urology health conditions.
Phone: 020 3417 9820
Email: info@theurologyfoundation.org
Website: www.theurologyfoundation.org
Ileostomy & Internal Pouch Association
IA is a registered UK charity supporting those who have undergone or face surgery for the formation of an ileostomy or internal pouch.
Phone: 0800 018 4724
Email: info@iasupport.org
Facebook community: www.facebook.com/iasupport
Website: www.iasupport.org
National Eczema Society
A UK registered charity to support the eczema community. Here to making life easier for the many children and adults in the UK living with eczema.
Phone: 020 7281 3553
Email: info@eczema.org
Website: www.eczema.org
Macmillan Cancer Support
A UK charity helping people navigate life with cancer, providing support and information and fundraising to improve care. There is a wealth of information and resources on their website as well as live chat.
Support line: 0808 808 0000
(Open 7 days a week, 8am - 8pm)
Website: www.macmillan.org.uk
Mind
A UK charity supporting mental health, offering counselling services and lots of information on their website. Live chat also available.
Support line: 0300 102 1234
(Mon - Fri, 9am - 6pm)
Infoline: 0300 123 3393
(Mon - Fri, 9am - 6pm)
Website: www.mind.org.uk
Self-Care Forum
A national charity which aims to further the reach of self-care and embed it into everyday life.
Lots of information and fact sheets on their website to support your own self-care of your health condition.
Website: www.selfcareforum.org
Fact sheets: www.selfcareforum.org/fact-sheets